Dementias are diseases of the brain. A diagnosis of dementia changes the ways people engage with each other – for those with forms of dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. Bringing together an interdisciplinary group of researchers and practitioners, and including the voices of people living with dementia, this innovative volume foregrounds the social, moral, political and economic dimensions of the dementia experience. Divided into two parts it investigates the twin challenges of reframing social attitudes and changing relationships. The first part critiques the stigmas, the negativity, the language and the fears often associated with a diagnosis of dementia, with the intent of improving quality of care. The second part focuses on the social changes and relationships required to live a good life with dementia, discussing issues such as advanced care planning, decision-making and person-centred care. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and ‘the caring society’. The Social Reframing of Dementia is an important read for all those practising, studying or researching dementia, as well as sociologists and anthropologists interested in wellbeing and health.
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